Patients living with: Persistent Postural Perceptual Dizziness (PPPD)

Data highlights from the Invitae Patient Insights Network

Who are we?

Who Are We?

Patients: 100 Ages: <1 to >60

Male
32% Male
Female
68% Female

Impact on our lives

iImpact On Our Lives

Frequent doctor visits

56% 2 - 6 times a year
10% 1 - 3 times per month

Major episodes of care

been to the ER
63% been to the ER
been admitted to hospital
24% been admitted to hospital
had surgery
13% had surgery

A combination of treatments

image description
Prescription medication 43% Over-the-counter supplements, vitamins, herbs, remedies 25% None 17%

Getting diagnosed

Getting diagnosed

Initial symptoms

Initial Symptoms
  • Dizziness
  • Fatigue
  • Changes in senses

Average age at diagnosis

Average Age at Diagnosis
54 Year(s) old
19 >60
Youngest AGE RANGE Oldest

Extensive testing

  • Physical examinationPhysical examination
  • MRIMRI
  • OtherOther
  • Medical historyMedical history
  • CT scanCT scan

Different types of tests

Different Types of Tests
16

Diagnosing specialty

  • Neurology
  • Ears, Nose, Throat Surgeon
  • Other type of doctor or healthcare provider

Patients everywhere are eager to help find better treatments

Better Treatments

80% want to be contacted about trials

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