Patients living with: Primary Lateral Sclerosis

Data highlights from the Invitae Patient Insights Network

Who are we?

Who Are We?

Patients: 44 Ages: 32 to >60

Male
57% Male
Female
43% Female

Impact on our lives

iImpact On Our Lives

Frequent doctor visits

64% 2 - 6 times a year
18% One time a year

Major episodes of care

been to the ER
50% been to the ER
been admitted to hospital
25% been admitted to hospital
had surgery
25% had surgery

A combination of treatments

image description
Prescription medication 43% Over-the-counter supplements, vitamins, herbs, remedies 20% None 14%

Getting diagnosed

Getting diagnosed

Initial symptoms

Initial Symptoms
  • Other
  • Weakness
  • Neuropathy

Average age at diagnosis

Average Age at Diagnosis
53 Year(s) old
28 >60
Youngest AGE RANGE Oldest

Extensive testing

  • MRIMRI
  • Physical examinationPhysical examination
  • Blood testsBlood tests
  • Medical historyMedical history
  • EEG (electroencephalogram, examines brain waves)EEG (electroencephalogram, examines brain waves)

Different types of tests

Different Types of Tests
16

Diagnosing specialty

  • Neurology

Patients everywhere are eager to help find better treatments

Better Treatments

98% want to be contacted about trials

Brought to you by:

Want to learn more?

Explore Directory Contact Us