Patients living with: Dilated Cardiomyopathy

Data highlights from the Invitae Patient Insights Network

Who are we?

Who Are We?

Patients: 36 Ages: 4 to >60

Male
19% Male
Female
81% Female

Impact on our lives

iImpact On Our Lives

Frequent doctor visits

72% 2 - 6 times a year
11% 7 - 11 times a year

Major episodes of care

been to the ER
38% been to the ER
been admitted to hospital
34% been admitted to hospital
had surgery
28% had surgery

A combination of treatments

image description
Prescription medication 47% Over-the-counter supplements, vitamins, herbs, remedies 21% Special diet/nutrition 18%

Getting diagnosed

Getting diagnosed

Initial symptoms

Initial Symptoms
  • Shortness of breath
  • Fatigue
  • Change in activity levels

Average age at diagnosis

Average Age at Diagnosis
53 Year(s) old
31 >60
Youngest AGE RANGE Oldest

Extensive testing

  • EchocardiogramEchocardiogram
  • EKG (electrocardiogram, examines heart rhythm)EKG (electrocardiogram, examines heart rhythm)
  • Physical examinationPhysical examination
  • Blood testsBlood tests
  • Family historyFamily history

Different types of tests

Different Types of Tests
16

Diagnosing specialty

  • Cardiology
  • Did not see a doctor or healthcare provider for this condition
  • Other type of doctor or healthcare provider

Patients everywhere are eager to help find better treatments

Better Treatments

92% want to be contacted about trials

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