Patients living with: Coats disease

Data highlights from the Invitae Patient Insights Network

Who are we?

Who Are We?

Patients: 473 Ages: 1 to >60

Male
77% Male
Female
22% Female

Impact on our lives

iImpact On Our Lives

Frequent doctor visits

34% 2 - 6 times a year
20% One time a year

Major episodes of care

had surgery
61% had surgery
been admitted to hospital
29% been admitted to hospital
been to the ER
10% been to the ER

A combination of treatments

image description
None 48% Medical therapy 19% Prescription medication 15%

Getting diagnosed

Getting diagnosed

Initial symptoms

Initial Symptoms
  • Changes in senses
  • Other
  • No symptoms

Average age at diagnosis

Average Age at Diagnosis
11 Year(s) old
<1 >60
Youngest AGE RANGE Oldest

Extensive testing

  • OtherOther
  • Physical examinationPhysical examination
  • CT scanCT scan
  • UnsureUnsure
  • MRIMRI

Different types of tests

Different Types of Tests
17

Diagnosing specialty

  • Ophthalmology
  • Other type of doctor or healthcare provider
  • Unsure

Patients everywhere are eager to help find better treatments

Better Treatments

95% want to be contacted about trials

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