Patients living with: Vestibular Schwannoma

Data highlights from the Invitae Patient Insights Network

Who are we?

Who Are We?

Patients: 321 Ages: 20 to >60

Male
32% Male
Female
66% Female

Impact on our lives

iImpact On Our Lives

Frequent doctor visits

54% 2 - 6 times a year
16% One time a year

Major episodes of care

had surgery
49% had surgery
been admitted to hospital
35% been admitted to hospital
been to the ER
16% been to the ER

A combination of treatments

image description
None 52% Prescription medication 13% Over-the-counter supplements, vitamins, herbs, remedies 10%

Getting diagnosed

Getting diagnosed

Initial symptoms

Initial Symptoms
  • Changes in senses
  • Dizziness
  • Other

Average age at diagnosis

Average Age at Diagnosis
50 Year(s) old
2 >60
Youngest AGE RANGE Oldest

Extensive testing

  • MRIMRI
  • OtherOther
  • Physical examinationPhysical examination
  • CT scanCT scan
  • Medical historyMedical history

Different types of tests

Different Types of Tests
8

Diagnosing specialty

  • Ears, Nose, Throat Surgeon
  • Neurology
  • Radiology

Patients everywhere are eager to help find better treatments

Better Treatments

81% want to be contacted about trials

Brought to you by:

Want to learn more?

Explore Directory Contact Us