Patients living with: Vestibular Schwannoma

Data highlights from the Invitae Patient Insights Network

Who are we?

Who Are We?

Patients: 276 Ages: 17 to >60

31% Male
68% Female

Impact on our lives

iImpact On Our Lives

Frequent doctor visits

52% 2 - 6 times a year
20% One time a year

Major episodes of care

had surgery
48% had surgery
been admitted to hospital
36% been admitted to hospital
been to the ER
16% been to the ER

A combination of treatments

image description
None 52% Prescription medication 14% Over-the-counter supplements, vitamins, herbs, remedies 9%

Getting diagnosed

Getting diagnosed

Initial symptoms

Initial Symptoms
  • Changes in senses
  • Dizziness
  • Other

Average age at diagnosis

Average Age at Diagnosis
50 Year(s) old
13 >60
Youngest AGE RANGE Oldest

Extensive testing

  • OtherOther
  • Physical examinationPhysical examination
  • CT scanCT scan
  • Medical historyMedical history

Different types of tests

Different Types of Tests

Diagnosing specialty

  • Ears, Nose, Throat Surgeon
  • Neurology
  • Radiology

Patients everywhere are eager to help find better treatments

Better Treatments

80% want to be contacted about trials

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