Patients living with: Adrenal Insufficiency

Data highlights from the Invitae Patient Insights Network

Who are we?

Who Are We?

Patients: 541 Ages: <1 to >60

18% Male
80% Female

Impact on our lives

iImpact On Our Lives

Frequent doctor visits

62% 2 - 6 times a year
12% 1 - 3 times per month

Major episodes of care

been to the ER
52% been to the ER
been admitted to hospital
41% been admitted to hospital
had surgery
7% had surgery

A combination of treatments

image description
Prescription medication 62% Over-the-counter supplements, vitamins, herbs, remedies 20% Special diet/nutrition 10%

Getting diagnosed

Getting diagnosed

Initial symptoms

Initial Symptoms
  • Fatigue
  • Change in activity levels
  • Weakness

Average age at diagnosis

Average Age at Diagnosis
32 Year(s) old
<1 >60
Youngest AGE RANGE Oldest

Extensive testing

  • Blood testsBlood tests
  • Physical examinationPhysical examination
  • Medical historyMedical history
  • CT scanCT scan

Different types of tests

Different Types of Tests

Diagnosing specialty

  • Endocrinology
  • General Practitioner/General Internal Medicine
  • Family Medicine

Patients everywhere are eager to help find better treatments

Better Treatments

83% want to be contacted about trials

Brought to you by:

Want to learn more?