Patients living with: Adrenal Insufficiency

Data highlights from the Invitae Patient Insights Network

Who are we?

Who Are We?

Patients: 717 Ages: 7 to >60

Male
18% Male
Female
81% Female

Impact on our lives

iImpact On Our Lives

Frequent doctor visits

61% 2 - 6 times a year
11% 1 - 3 times per month

Major episodes of care

been to the ER
52% been to the ER
been admitted to hospital
41% been admitted to hospital
had surgery
7% had surgery

A combination of treatments

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Prescription medication 62% Over-the-counter supplements, vitamins, herbs, remedies 20% Special diet/nutrition 10%

Getting diagnosed

Getting diagnosed

Initial symptoms

Initial Symptoms
  • Fatigue
  • Change in activity levels
  • Weakness

Average age at diagnosis

Average Age at Diagnosis
33 Year(s) old
<1 >60
Youngest AGE RANGE Oldest

Extensive testing

  • Blood testsBlood tests
  • Physical examinationPhysical examination
  • Medical historyMedical history
  • MRIMRI
  • CT scanCT scan

Different types of tests

Different Types of Tests
21

Diagnosing specialty

  • Endocrinology
  • General Practitioner/General Internal Medicine
  • Family Medicine

Patients everywhere are eager to help find better treatments

Better Treatments

83% want to be contacted about trials

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