Patients living with:
CADASIL
Data highlights from the Invitae Patient Insights Network
Who are we?
Patients: 523 Ages: 5 to >60
Impact on our lives
Frequent doctor visits
41%
2 - 6 times a year
25%
One time a year
Major episodes of care
45%
been admitted to hospital
A combination of treatments
Prescription medication 45%
Over-the-counter supplements, vitamins, herbs, remedies 33%
None 9%
Getting diagnosed
Initial symptoms
- Other
- Neuropathy
- Changes in senses
Average age at diagnosis
1
>60
Youngest
AGE RANGE
Oldest
Diagnosing specialty
- Neurology
- Genetics
- General Practitioner/General Internal Medicine
Patients everywhere are eager to help find better treatments
92% want to be contacted about trials
Brought to you by: