Patients living with: Morgellons Disease (Unexplained Dermopathy)

Data highlights from the Invitae Patient Insights Network

Who are we?

Who Are We?

Patients: 22 Ages: 30 to >60

36% Male
64% Female

Impact on our lives

iImpact On Our Lives

Frequent doctor visits

67% 7 - 11 times a year
33% Do not see a doctor or healthcare provider for this condition

Major episodes of care

been to the ER
67% been to the ER
been admitted to hospital
25% been admitted to hospital
had surgery
8% had surgery

A combination of treatments

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Over-the-counter supplements, vitamins, herbs, remedies 38% Prescription medication 38% Other 13%

Getting diagnosed

Getting diagnosed

Initial symptoms

Initial Symptoms
  • Skin problems
  • Change in activity levels
  • Changes in appetite

Average age at diagnosis

Average Age at Diagnosis
49 Year(s) old
24 >60
Youngest AGE RANGE Oldest

Extensive testing

  • BiopsyBiopsy
  • Physical examinationPhysical examination
  • Blood testsBlood tests
  • Medical historyMedical history
  • OtherOther

Different types of tests

Different Types of Tests

Diagnosing specialty

  • Did not see a doctor or healthcare provider for this condition
  • Family Medicine
  • Infectious Disease

Patients everywhere are eager to help find better treatments

Better Treatments

95% want to be contacted about trials

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