Patients living with: Morgellons Disease (Unexplained Dermopathy)

Data highlights from the Invitae Patient Insights Network

Who are we?

Who Are We?

Patients: 2,402 Ages: 2 to >60

Male
17% Male
Female
81% Female

Impact on our lives

iImpact On Our Lives

Frequent doctor visits

37% Do not see a doctor or healthcare provider for this condition
21% 2 - 6 times a year

Major episodes of care

been to the ER
69% been to the ER
been admitted to hospital
24% been admitted to hospital
had surgery
7% had surgery

A combination of treatments

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Over-the-counter supplements, vitamins, herbs, remedies 38% Prescription medication 24% Special diet/nutrition 16%

Getting diagnosed

Getting diagnosed

Initial symptoms

Initial Symptoms
  • Skin problems
  • Fatigue
  • Malaise

Average age at diagnosis

Average Age at Diagnosis
47 Year(s) old
1 >60
Youngest AGE RANGE Oldest

Extensive testing

  • NoneNone
  • Physical examinationPhysical examination
  • Blood testsBlood tests
  • OtherOther
  • Medical historyMedical history

Different types of tests

Different Types of Tests
20

Diagnosing specialty

  • Did not see a doctor or healthcare provider for this condition
  • Unsure
  • Other type of doctor or healthcare provider

Patients everywhere are eager to help find better treatments

Better Treatments

94% want to be contacted about trials

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