Patients living with: Other

Data highlights from the Invitae Patient Insights Network

Who are we?

Who Are We?

Patients: 43 Ages: 14 to >60

Male
14% Male
Female
86% Female

Impact on our lives

iImpact On Our Lives

Frequent doctor visits

56% 2 - 6 times a year
22% 7 - 11 times a year

Major episodes of care

been to the ER
51% been to the ER
been admitted to hospital
32% been admitted to hospital
had surgery
16% had surgery

A combination of treatments

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Prescription medication 38% Over-the-counter supplements, vitamins, herbs, remedies 25% Special diet/nutrition 19%

Getting diagnosed

Getting diagnosed

Initial symptoms

Initial Symptoms
  • Dizziness
  • Changes in senses
  • Change in activity levels

Average age at diagnosis

Average Age at Diagnosis
43 Year(s) old
8 >60
Youngest AGE RANGE Oldest

Extensive testing

  • OtherOther
  • Physical examinationPhysical examination
  • MRIMRI
  • CT scanCT scan
  • Blood testsBlood tests

Different types of tests

Different Types of Tests
14

Diagnosing specialty

  • Ears, Nose, Throat Surgeon
  • Neurology
  • Physical Medicine and Rehabilitation

Patients everywhere are eager to help find better treatments

Better Treatments

84% want to be contacted about trials

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