Patients living with: Not Yet Diagnosed (NYD)

Data highlights from the Invitae Patient Insights Network

Who are we?

Who Are We?

Patients: 65 Ages: 17 to >60

Male
15% Male
Female
85% Female

Impact on our lives

iImpact On Our Lives

Frequent doctor visits

56% 2 - 6 times a year
11% 1 - 3 times per month

Major episodes of care

been to the ER
67% been to the ER
been admitted to hospital
25% been admitted to hospital
had surgery
8% had surgery

A combination of treatments

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Prescription medication 46% Other 15% Over-the-counter supplements, vitamins, herbs, remedies 15%

Getting diagnosed

Getting diagnosed

Initial symptoms

Initial Symptoms
  • Dizziness
  • Fatigue
  • Changes in senses

Average age at diagnosis

Average Age at Diagnosis
41 Year(s) old
1 >60
Youngest AGE RANGE Oldest

Extensive testing

  • MRIMRI
  • OtherOther
  • Physical examinationPhysical examination
  • Blood testsBlood tests
  • Medical historyMedical history

Different types of tests

Different Types of Tests
14

Diagnosing specialty

  • Ears, Nose, Throat Surgeon
  • Did not see a doctor or healthcare provider for this condition
  • Neurology

Patients everywhere are eager to help find better treatments

Better Treatments

83% want to be contacted about trials

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