Patients living with: Not Yet Diagnosed (NYD)

Data highlights from the Invitae Patient Insights Network

Who are we?

Who Are We?

Patients: 211 Ages: 8 to >60

Male
28% Male
Female
70% Female

Impact on our lives

iImpact On Our Lives

Frequent doctor visits

44% 2 - 6 times a year
14% Do not see a doctor or healthcare provider for this condition

Major episodes of care

been to the ER
64% been to the ER
been admitted to hospital
28% been admitted to hospital
had surgery
7% had surgery

A combination of treatments

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Prescription medication 31% None 23% Over-the-counter supplements, vitamins, herbs, remedies 22%

Getting diagnosed

Getting diagnosed

Initial symptoms

Initial Symptoms
  • Dizziness
  • Fatigue
  • Changes in senses

Average age at diagnosis

Average Age at Diagnosis
48 Year(s) old
1 >60
Youngest AGE RANGE Oldest

Extensive testing

  • MRIMRI
  • Physical examinationPhysical examination
  • OtherOther
  • Blood testsBlood tests
  • CT scanCT scan

Different types of tests

Different Types of Tests
18

Diagnosing specialty

  • Ears, Nose, Throat Surgeon
  • Neurology
  • Did not see a doctor or healthcare provider for this condition

Patients everywhere are eager to help find better treatments

Better Treatments

84% want to be contacted about trials

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