Patients living with: Bilateral Vestibular Hypofunction

Data highlights from the Invitae Patient Insights Network

Who are we?

Who Are We?

Patients: 60 Ages: 23 to >60

20% Male
80% Female

Impact on our lives

iImpact On Our Lives

Frequent doctor visits

44% 2 - 6 times a year
11% 1 - 3 times per month

Major episodes of care

been to the ER
56% been to the ER
been admitted to hospital
36% been admitted to hospital
had surgery
8% had surgery

A combination of treatments

image description
Prescription medication 38% None 31% Over-the-counter supplements, vitamins, herbs, remedies 23%

Getting diagnosed

Getting diagnosed

Initial symptoms

Initial Symptoms
  • Dizziness
  • Changes in senses
  • Fatigue

Average age at diagnosis

Average Age at Diagnosis
43 Year(s) old
10 >60
Youngest AGE RANGE Oldest

Extensive testing

  • OtherOther
  • CT scanCT scan
  • Medical historyMedical history
  • Physical examinationPhysical examination

Different types of tests

Different Types of Tests

Diagnosing specialty

  • Ears, Nose, Throat Surgeon
  • Neurology
  • Emergency Medicine

Patients everywhere are eager to help find better treatments

Better Treatments

93% want to be contacted about trials

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