Patients living with: Bilateral Vestibular Hypofunction

Data highlights from the Invitae Patient Insights Network

Who are we?

Who Are We?

Patients: 161 Ages: 28 to >60

Male
31% Male
Female
68% Female

Impact on our lives

iImpact On Our Lives

Frequent doctor visits

31% 2 - 6 times a year
21% One time a year

Major episodes of care

been to the ER
59% been to the ER
been admitted to hospital
34% been admitted to hospital
had surgery
7% had surgery

A combination of treatments

image description
None 44% Prescription medication 19% Other 18%

Getting diagnosed

Getting diagnosed

Initial symptoms

Initial Symptoms
  • Dizziness
  • Changes in senses
  • Fatigue

Average age at diagnosis

Average Age at Diagnosis
50 Year(s) old
10 >60
Youngest AGE RANGE Oldest

Extensive testing

  • OtherOther
  • MRIMRI
  • Physical examinationPhysical examination
  • CT scanCT scan
  • Medical historyMedical history

Different types of tests

Different Types of Tests
16

Diagnosing specialty

  • Ears, Nose, Throat Surgeon
  • Other type of doctor or healthcare provider
  • Neurology

Patients everywhere are eager to help find better treatments

Better Treatments

89% want to be contacted about trials

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