Patients living with:
Epithelioid Hemangioendothelioma
Data highlights from the Invitae Patient Insights Network
Who are we?
Patients: 470 Ages: 8 to >60
Impact on our lives
Frequent doctor visits
43%
2 - 6 times a year
15%
One time a year
Major episodes of care
41%
been admitted to hospital
A combination of treatments
None 29%
Prescription medication 22%
Medical therapy 19%
Getting diagnosed
Initial symptoms
Average age at diagnosis
1
>60
Youngest
AGE RANGE
Oldest
Diagnosing specialty
- Oncology
- Orthopedics
- Unsure
Patients everywhere are eager to help find better treatments
88% want to be contacted about trials
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