Patients living with: Vestibular Hyperacusis

Data highlights from the Invitae Patient Insights Network

Who are we?

Who Are We?

Patients: 24 Ages: 19 to >60

Male
38% Male
Female
63% Female

Impact on our lives

iImpact On Our Lives

Frequent doctor visits

43% 1 or more times per week
43% 2 - 6 times a year

Major episodes of care

been to the ER
45% been to the ER
been admitted to hospital
36% been admitted to hospital
had surgery
18% had surgery

A combination of treatments

image description
None 22% Other 22% Over-the-counter supplements, vitamins, herbs, remedies 22%

Getting diagnosed

Getting diagnosed

Initial symptoms

Initial Symptoms
  • Dizziness
  • Changes in senses
  • Fatigue

Average age at diagnosis

Average Age at Diagnosis
53 Year(s) old
2 >60
Youngest AGE RANGE Oldest

Extensive testing

  • OtherOther
  • Physical examinationPhysical examination
  • MRIMRI
  • CT scanCT scan
  • Blood testsBlood tests

Different types of tests

Different Types of Tests
8

Diagnosing specialty

  • Ears, Nose, Throat Surgeon
  • Neurology
  • Developmental/Behavioral Specialist

Patients everywhere are eager to help find better treatments

Better Treatments

96% want to be contacted about trials

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