Patients living with: Vestibular Hyperacusis

Data highlights from the Invitae Patient Insights Network

Who are we?

Who Are We?

Patients: 12 Ages: 12 to >60

42% Male
58% Female

Impact on our lives

iImpact On Our Lives

Frequent doctor visits

100% 1 or more times per week

Major episodes of care

been to the ER
60% been to the ER
been admitted to hospital
40% been admitted to hospital

A combination of treatments

image description
None 33% Other 33% Over-the-counter supplements, vitamins, herbs, remedies 33%

Getting diagnosed

Getting diagnosed

Initial symptoms

Initial Symptoms
  • Dizziness
  • Fatigue
  • Changes in senses

Average age at diagnosis

Average Age at Diagnosis
41 Year(s) old
2 60
Youngest AGE RANGE Oldest

Extensive testing

  • OtherOther
  • Family historyFamily history
  • Physical examinationPhysical examination

Different types of tests

Different Types of Tests

Diagnosing specialty

  • Ears, Nose, Throat Surgeon
  • Developmental/Behavioral Specialist
  • Ophthalmology

Patients everywhere are eager to help find better treatments

Better Treatments

100% want to be contacted about trials

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