Patients living with: Superior Canal Dehiscence (SCD)

Data highlights from the Invitae Patient Insights Network

Who are we?

Who Are We?

Patients: 16 Ages: 23 to >60

25% Male
75% Female

Impact on our lives

iImpact On Our Lives

Frequent doctor visits

100% Do not see a doctor or healthcare provider for this condition

Major episodes of care

been to the ER
40% been to the ER
been admitted to hospital
33% been admitted to hospital
had surgery
27% had surgery

A combination of treatments

image description
None 100%

Getting diagnosed

Getting diagnosed

Initial symptoms

Initial Symptoms
  • Dizziness
  • Changes in senses
  • Confusion

Average age at diagnosis

Average Age at Diagnosis
51 Year(s) old
22 >60
Youngest AGE RANGE Oldest

Extensive testing

  • CT scanCT scan
  • OtherOther
  • Medical historyMedical history
  • Physical examinationPhysical examination

Different types of tests

Different Types of Tests

Diagnosing specialty

  • Ears, Nose, Throat Surgeon
  • General Practitioner/General Internal Medicine
  • Neurology

Patients everywhere are eager to help find better treatments

Better Treatments

94% want to be contacted about trials

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