Patients living with: Superior Canal Dehiscence (SCD)

Data highlights from the Invitae Patient Insights Network

Who are we?

Who Are We?

Patients: 42 Ages: 26 to >60

Male
24% Male
Female
76% Female

Impact on our lives

iImpact On Our Lives

Frequent doctor visits

30% Less than once a year
20% 1 - 3 times per month

Major episodes of care

been to the ER
35% been to the ER
had surgery
35% had surgery
been admitted to hospital
31% been admitted to hospital

A combination of treatments

image description
None 64% Over-the-counter supplements, vitamins, herbs, remedies 18% Prescription medication 18%

Getting diagnosed

Getting diagnosed

Initial symptoms

Initial Symptoms
  • Dizziness
  • Changes in senses
  • Other

Average age at diagnosis

Average Age at Diagnosis
52 Year(s) old
22 >60
Youngest AGE RANGE Oldest

Extensive testing

  • CT scanCT scan
  • OtherOther
  • Medical historyMedical history
  • MRIMRI
  • Physical examinationPhysical examination

Different types of tests

Different Types of Tests
10

Diagnosing specialty

  • Ears, Nose, Throat Surgeon
  • General Practitioner/General Internal Medicine
  • Neurology

Patients everywhere are eager to help find better treatments

Better Treatments

90% want to be contacted about trials

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