Patients living with:
Secondary Endolymphatic Hydrops (SEH)
Data highlights from the Invitae Patient Insights Network
Who are we?
Patients: 13 Ages: 42 to >60
Impact on our lives
Frequent doctor visits
33%
2 - 6 times a year
33%
7 - 11 times a year
Major episodes of care
22%
been admitted to hospital
A combination of treatments
Prescription medication 60%
Over-the-counter supplements, vitamins, herbs, remedies 20%
Special diet/nutrition 20%
Getting diagnosed
Initial symptoms
- Dizziness
- Change in activity levels
- Confusion
Average age at diagnosis
28
58
Youngest
AGE RANGE
Oldest
Diagnosing specialty
- Ears, Nose, Throat Surgeon
- Neurology
- Unsure
Patients everywhere are eager to help find better treatments
92% want to be contacted about trials
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