Patients living with: Perilymph Fistula

Data highlights from the Invitae Patient Insights Network

Who are we?

Who Are We?

Patients: 15 Ages: 33 to >60

Male
33% Male
Female
67% Female

Impact on our lives

iImpact On Our Lives

Frequent doctor visits

50% 2 - 6 times a year
25% 1 or more times per week

Major episodes of care

had surgery
36% had surgery
been admitted to hospital
32% been admitted to hospital
been to the ER
32% been to the ER

A combination of treatments

image description
Prescription medication 50% Special diet/nutrition 25% Medical therapy 13%

Getting diagnosed

Getting diagnosed

Initial symptoms

Initial Symptoms
  • Dizziness
  • Fatigue
  • Change in activity levels

Average age at diagnosis

Average Age at Diagnosis
47 Year(s) old
32 59
Youngest AGE RANGE Oldest

Extensive testing

  • Medical historyMedical history
  • MRIMRI
  • OtherOther
  • Physical examinationPhysical examination
  • Blood testsBlood tests

Different types of tests

Different Types of Tests
10

Diagnosing specialty

  • Ears, Nose, Throat Surgeon
  • Neurology
  • Other type of doctor or healthcare provider

Patients everywhere are eager to help find better treatments

Better Treatments

100% want to be contacted about trials

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