Patients living with: Perilymph Fistula

Data highlights from the Invitae Patient Insights Network

Who are we?

Who Are We?

Patients: 11 Ages: 26 to >60

36% Male
64% Female

Impact on our lives

iImpact On Our Lives

Frequent doctor visits

100% 1 or more times per week

Major episodes of care

had surgery
37% had surgery
been admitted to hospital
32% been admitted to hospital
been to the ER
32% been to the ER

A combination of treatments

image description
Over-the-counter supplements, vitamins, herbs, remedies 33% Prescription medication 33% Special diet/nutrition 33%

Getting diagnosed

Getting diagnosed

Initial symptoms

Initial Symptoms

Average age at diagnosis

Average Age at Diagnosis
48 Year(s) old
32 59
Youngest AGE RANGE Oldest

Extensive testing

Different types of tests

Different Types of Tests

Diagnosing specialty

  • Ears, Nose, Throat Surgeon
  • Neurology

Patients everywhere are eager to help find better treatments

Better Treatments

100% want to be contacted about trials

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