Patients living with: Mal de Debarquement

Data highlights from the Invitae Patient Insights Network

Who are we?

Who Are We?

Patients: 790 Ages: <1 to >60

Male
9% Male
Female
90% Female

Impact on our lives

iImpact On Our Lives

Frequent doctor visits

31% 2 - 6 times a year
20% Less than once a year

Major episodes of care

been to the ER
75% been to the ER
been admitted to hospital
22% been admitted to hospital
had surgery
3% had surgery

A combination of treatments

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Prescription medication 42% Over-the-counter supplements, vitamins, herbs, remedies 22% None 20%

Getting diagnosed

Getting diagnosed

Initial symptoms

Initial Symptoms
  • Dizziness
  • Fatigue
  • Changes in senses

Average age at diagnosis

Average Age at Diagnosis
47 Year(s) old
<1 >60
Youngest AGE RANGE Oldest

Extensive testing

  • Physical examinationPhysical examination
  • OtherOther
  • MRIMRI
  • Medical historyMedical history
  • Blood testsBlood tests

Different types of tests

Different Types of Tests
19

Diagnosing specialty

  • Ears, Nose, Throat Surgeon
  • Neurology
  • Physical Medicine and Rehabilitation

Patients everywhere are eager to help find better treatments

Better Treatments

94% want to be contacted about trials

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