Patients living with: Autoimmune Inner Ear Disease (AIED)

Data highlights from the Invitae Patient Insights Network

Who are we?

Who Are We?

Patients: 10 Ages: 39 to >60

10% Male
90% Female

Impact on our lives

iImpact On Our Lives

Frequent doctor visits

100% 1 - 3 times per month

Major episodes of care

been to the ER
60% been to the ER
been admitted to hospital
40% been admitted to hospital

A combination of treatments

image description
Prescription medication 100%

Getting diagnosed

Getting diagnosed

Initial symptoms

Initial Symptoms
  • Chronic cough
  • Shortness of breath
  • Weakness

Average age at diagnosis

Average Age at Diagnosis
44 Year(s) old
40 53
Youngest AGE RANGE Oldest

Extensive testing

  • Blood testsBlood tests
  • CT scanCT scan
  • EEG (electroencephalogram, examines brain waves)EEG (electroencephalogram, examines brain waves)
  • Medical historyMedical history
  • OtherOther

Different types of tests

Different Types of Tests

Diagnosing specialty

  • Ears, Nose, Throat Surgeon
  • Physical Medicine and Rehabilitation
  • Rheumatology

Patients everywhere are eager to help find better treatments

Better Treatments

70% want to be contacted about trials

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