Patients living with: Autoimmune Inner Ear Disease (AIED)

Data highlights from the Invitae Patient Insights Network

Who are we?

Who Are We?

Patients: 21 Ages: 38 to >60

Male
24% Male
Female
76% Female

Impact on our lives

iImpact On Our Lives

Frequent doctor visits

60% 2 - 6 times a year
20% 1 - 3 times per month

Major episodes of care

been to the ER
63% been to the ER
been admitted to hospital
25% been admitted to hospital
had surgery
13% had surgery

A combination of treatments

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Over-the-counter supplements, vitamins, herbs, remedies 40% Prescription medication 40% Medical therapy 10%

Getting diagnosed

Getting diagnosed

Initial symptoms

Initial Symptoms
  • Dizziness
  • Change in activity levels
  • Chronic cough

Average age at diagnosis

Average Age at Diagnosis
44 Year(s) old
16 >60
Youngest AGE RANGE Oldest

Extensive testing

  • Medical historyMedical history
  • MRIMRI
  • Physical examinationPhysical examination
  • Blood testsBlood tests
  • CT scanCT scan

Different types of tests

Different Types of Tests
10

Diagnosing specialty

  • Ears, Nose, Throat Surgeon
  • Neurology
  • Physical Medicine and Rehabilitation

Patients everywhere are eager to help find better treatments

Better Treatments

86% want to be contacted about trials

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