Patients living with: Acoustic Neuroma

Data highlights from the Invitae Patient Insights Network

Who are we?

Who Are We?

Patients: 1,182 Ages: 11 to >60

30% Male
70% Female

Impact on our lives

iImpact On Our Lives

Frequent doctor visits

32% 2 - 6 times a year
27% One time a year

Major episodes of care

had surgery
49% had surgery
been admitted to hospital
37% been admitted to hospital
been to the ER
14% been to the ER

A combination of treatments

image description
None 55% Prescription medication 14% Over-the-counter supplements, vitamins, herbs, remedies 13%

Getting diagnosed

Getting diagnosed

Initial symptoms

Initial Symptoms
  • Changes in senses
  • Dizziness
  • Other

Average age at diagnosis

Average Age at Diagnosis
51 Year(s) old
1 >60
Youngest AGE RANGE Oldest

Extensive testing

  • CT scanCT scan
  • OtherOther
  • Physical examinationPhysical examination
  • Medical historyMedical history

Different types of tests

Different Types of Tests

Diagnosing specialty

  • Ears, Nose, Throat Surgeon
  • Neurology
  • General Practitioner/General Internal Medicine

Patients everywhere are eager to help find better treatments

Better Treatments

78% want to be contacted about trials

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