Patients living with: Vestibular Migraine (aka Migraine Associated Vertigo or MAV)

Data highlights from the Invitae Patient Insights Network

Who are we?

Who Are We?

Patients: 121 Ages: 20 to >60

18% Male
82% Female

Impact on our lives

iImpact On Our Lives

Frequent doctor visits

61% 2 - 6 times a year
17% 7 - 11 times a year

Major episodes of care

been to the ER
77% been to the ER
been admitted to hospital
16% been admitted to hospital
had surgery
7% had surgery

A combination of treatments

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Prescription medication 42% Over-the-counter supplements, vitamins, herbs, remedies 29% Special diet/nutrition 21%

Getting diagnosed

Getting diagnosed

Initial symptoms

Initial Symptoms
  • Dizziness
  • Changes in senses
  • Fatigue

Average age at diagnosis

Average Age at Diagnosis
45 Year(s) old
15 >60
Youngest AGE RANGE Oldest

Extensive testing

  • Physical examinationPhysical examination
  • CT scanCT scan
  • OtherOther
  • Blood testsBlood tests

Different types of tests

Different Types of Tests

Diagnosing specialty

  • Neurology
  • Ears, Nose, Throat Surgeon
  • Other type of doctor or healthcare provider

Patients everywhere are eager to help find better treatments

Better Treatments

81% want to be contacted about trials

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