Patients living with:
Eosinophilic Duodenitis
Data highlights from the Invitae Patient Insights Network
Who are we?
Patients: 10 Ages: 7 to >60
Impact on our lives
Frequent doctor visits
50%
Unsure
25%
1 - 3 times per month
Major episodes of care
44%
been admitted to hospital
A combination of treatments
Prescription medication 33%
Special diet/nutrition 33%
Medical foods 11%
Getting diagnosed
Initial symptoms
- Gastrointestinal problems
- Change in bowel and/or bladder habits
- Growth delay
Average age at diagnosis
1
59
Youngest
AGE RANGE
Oldest
Diagnosing specialty
- Gastroenterology
- Endocrinology
- Other type of doctor or healthcare provider
Patients everywhere are eager to help find better treatments
90% want to be contacted about trials
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