Patients living with: Demonstration Purposes Only

Data highlights from the Invitae Patient Insights Network

Who are we?

Who Are We?

Patients: 305 Ages: <1 to >60

Male
44% Male
Female
55% Female

Impact on our lives

iImpact On Our Lives

Frequent doctor visits

34% 2 - 6 times a year
24% One time a year

Major episodes of care

been admitted to hospital
39% been admitted to hospital
been to the ER
36% been to the ER
had surgery
24% had surgery

A combination of treatments

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Prescription medication 34% Over-the-counter supplements, vitamins, herbs, remedies 19% Special diet/nutrition 15%

Getting diagnosed

Getting diagnosed

Initial symptoms

Initial Symptoms
  • Other
  • Gastrointestinal problems
  • Change in activity levels

Average age at diagnosis

Average Age at Diagnosis
19 Year(s) old
<1 >60
Youngest AGE RANGE Oldest

Extensive testing

  • Blood testsBlood tests
  • Genetic TestingGenetic Testing
  • Physical examinationPhysical examination
  • CT scanCT scan
  • Medical historyMedical history

Different types of tests

Different Types of Tests
22

Diagnosing specialty

  • Genetics
  • Allergy/Immunology
  • Oncology

Patients everywhere are eager to help find better treatments

Better Treatments

76% want to be contacted about trials

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