Patients living with: Linear Scleroderma

Data highlights from the Invitae Patient Insights Network

Who are we?

Who Are We?

Patients: 59 Ages: 11 to >60

Male
17% Male
Female
83% Female

Impact on our lives

iImpact On Our Lives

Frequent doctor visits

40% 2 - 6 times a year
40% One time a year

Major episodes of care

had surgery
43% had surgery
been admitted to hospital
35% been admitted to hospital
been to the ER
23% been to the ER

A combination of treatments

image description
Prescription medication 50% Other 33% Over-the-counter supplements, vitamins, herbs, remedies 17%

Getting diagnosed

Getting diagnosed

Initial symptoms

Initial Symptoms
  • Other
  • Skin problems
  • Pain

Average age at diagnosis

Average Age at Diagnosis
23 Year(s) old
4 58
Youngest AGE RANGE Oldest

Extensive testing

  • BiopsyBiopsy
  • Blood testsBlood tests
  • UnsureUnsure
  • CT scanCT scan
  • MRIMRI

Different types of tests

Different Types of Tests
7

Diagnosing specialty

  • Dermatology
  • Neurology
  • Rheumatology

Patients everywhere are eager to help find better treatments

Better Treatments

88% want to be contacted about trials

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