Patients living with: Linear Scleroderma

Data highlights from the Invitae Patient Insights Network

Who are we?

Who Are We?

Patients: 27 Ages: 15 to >60

15% Male
85% Female

Impact on our lives

iImpact On Our Lives

Frequent doctor visits

50% 2 - 6 times a year
50% One time a year

Major episodes of care

had surgery
42% had surgery
been admitted to hospital
37% been admitted to hospital
been to the ER
21% been to the ER

A combination of treatments

image description
Other 50% Prescription medication 50%

Getting diagnosed

Getting diagnosed

Initial symptoms

Initial Symptoms
  • Other
  • Skin problems
  • Pain

Average age at diagnosis

Average Age at Diagnosis
24 Year(s) old
4 58
Youngest AGE RANGE Oldest

Extensive testing

  • BiopsyBiopsy
  • Blood testsBlood tests
  • CT scanCT scan
  • UnsureUnsure

Different types of tests

Different Types of Tests

Diagnosing specialty

  • Dermatology
  • Neurology
  • Plastic Surgery

Patients everywhere are eager to help find better treatments

Better Treatments

89% want to be contacted about trials

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