Patients living with:
Polymicrogyria (PMG)
Data highlights from the Invitae Patient Insights Network
Who are we?
Patients: 97 Ages: 1 to 37
Impact on our lives
Frequent doctor visits
67%
2 - 6 times a year
17%
1 or more times per week
Major episodes of care
42%
been admitted to hospital
A combination of treatments
Prescription medication 33%
Over-the-counter supplements, vitamins, herbs, remedies 27%
Other 13%
Getting diagnosed
Initial symptoms
- Developmental delays
- Other
- Weakness
Average age at diagnosis
<1
10
Youngest
AGE RANGE
Oldest
Diagnosing specialty
- Neurology
- Genetics
- Other type of doctor or healthcare provider
Patients everywhere are eager to help find better treatments
89% want to be contacted about trials
Brought to you by: