Patients living with: Eosinophilia Myalgia Syndrome

Data highlights from the Invitae Patient Insights Network

Who are we?

Who Are We?

Patients: 59 Ages: 2 to >60

Male
58% Male
Female
42% Female

Impact on our lives

iImpact On Our Lives

Frequent doctor visits

67% 7 - 11 times a year
33% One time a year

Major episodes of care

been to the ER
46% been to the ER
been admitted to hospital
40% been admitted to hospital
had surgery
15% had surgery

A combination of treatments

image description
Over-the-counter supplements, vitamins, herbs, remedies 40% Prescription medication 40% None 20%

Getting diagnosed

Getting diagnosed

Initial symptoms

Initial Symptoms
  • Fatigue
  • Weakness
  • Fever not due to obvious illness

Average age at diagnosis

Average Age at Diagnosis
19 Year(s) old
1 55
Youngest AGE RANGE Oldest

Extensive testing

  • Blood testsBlood tests
  • BiopsyBiopsy
  • MRIMRI
  • OtherOther
  • CT scanCT scan

Different types of tests

Different Types of Tests
9

Diagnosing specialty

  • Gastroenterology
  • Allergy/Immunology
  • Family Medicine

Patients everywhere are eager to help find better treatments

Better Treatments

78% want to be contacted about trials

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