Patients living with: Eosinophilia Myalgia Syndrome

Data highlights from the Invitae Patient Insights Network

Who are we?

Who Are We?

Patients: 25 Ages: 2 to >60

56% Male
44% Female

Impact on our lives

iImpact On Our Lives

Frequent doctor visits

100% 7 - 11 times a year

Major episodes of care

been to the ER
45% been to the ER
been admitted to hospital
40% been admitted to hospital
had surgery
15% had surgery

A combination of treatments

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Over-the-counter supplements, vitamins, herbs, remedies 50% Prescription medication 50%

Getting diagnosed

Getting diagnosed

Initial symptoms

Initial Symptoms
  • Fatigue
  • Fever not due to obvious illness
  • Malaise

Average age at diagnosis

Average Age at Diagnosis
18 Year(s) old
1 55
Youngest AGE RANGE Oldest

Extensive testing

  • BiopsyBiopsy
  • Blood testsBlood tests

Different types of tests

Different Types of Tests

Diagnosing specialty

  • Gastroenterology
  • Allergy/Immunology
  • Family Medicine

Patients everywhere are eager to help find better treatments

Better Treatments

76% want to be contacted about trials

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