Patients living with: Hypereosinophilic Syndrome

Data highlights from the Invitae Patient Insights Network

Who are we?

Who Are We?

Patients: 40 Ages: 3 to >60

Male
30% Male
Female
70% Female

Impact on our lives

iImpact On Our Lives

Frequent doctor visits

33% 1 - 3 times per month
33% 7 - 11 times a year

Major episodes of care

been to the ER
48% been to the ER
been admitted to hospital
36% been admitted to hospital
had surgery
16% had surgery

A combination of treatments

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Prescription medication 67% Over-the-counter supplements, vitamins, herbs, remedies 22% Medical therapy 11%

Getting diagnosed

Getting diagnosed

Initial symptoms

Initial Symptoms
  • Abnormal laboratory findings
  • Fatigue
  • Gastrointestinal problems

Average age at diagnosis

Average Age at Diagnosis
37 Year(s) old
1 >60
Youngest AGE RANGE Oldest

Extensive testing

  • Blood testsBlood tests
  • BiopsyBiopsy
  • Physical examinationPhysical examination
  • EchocardiogramEchocardiogram
  • Genetic TestingGenetic Testing

Different types of tests

Different Types of Tests
17

Diagnosing specialty

  • Hematology
  • Allergy/Immunology
  • Pulmonology

Patients everywhere are eager to help find better treatments

Better Treatments

93% want to be contacted about trials

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