Patients living with: Hypereosinophilic Syndrome

Data highlights from the Invitae Patient Insights Network

Who are we?

Who Are We?

Patients: 252 Ages: 3 to >60

Male
33% Male
Female
63% Female

Impact on our lives

iImpact On Our Lives

Frequent doctor visits

35% 2 - 6 times a year
26% 1 - 3 times per month

Major episodes of care

been to the ER
46% been to the ER
been admitted to hospital
38% been admitted to hospital
had surgery
16% had surgery

A combination of treatments

image description
Prescription medication 42% Over-the-counter supplements, vitamins, herbs, remedies 19% Medical therapy 13%

Getting diagnosed

Getting diagnosed

Initial symptoms

Initial Symptoms
  • Fatigue
  • Abnormal laboratory findings
  • Gastrointestinal problems

Average age at diagnosis

Average Age at Diagnosis
35 Year(s) old
1 >60
Youngest AGE RANGE Oldest

Extensive testing

  • Blood testsBlood tests
  • BiopsyBiopsy
  • Physical examinationPhysical examination
  • CT scanCT scan
  • EKG (electrocardiogram, examines heart rhythm)EKG (electrocardiogram, examines heart rhythm)

Different types of tests

Different Types of Tests
20

Diagnosing specialty

  • Hematology
  • Allergy/Immunology
  • Gastroenterology

Patients everywhere are eager to help find better treatments

Better Treatments

90% want to be contacted about trials

Brought to you by:

Want to learn more?