Patients living with:
Hypereosinophilic Syndrome
Data highlights from the Invitae Patient Insights Network
Who are we?
Patients: 252 Ages: 3 to >60
Impact on our lives
Frequent doctor visits
35%
2 - 6 times a year
26%
1 - 3 times per month
Major episodes of care
38%
been admitted to hospital
A combination of treatments
Prescription medication 42%
Over-the-counter supplements, vitamins, herbs, remedies 19%
Medical therapy 13%
Getting diagnosed
Initial symptoms
- Fatigue
- Abnormal laboratory findings
- Gastrointestinal problems
Average age at diagnosis
1
>60
Youngest
AGE RANGE
Oldest
Diagnosing specialty
- Hematology
- Allergy/Immunology
- Gastroenterology
Patients everywhere are eager to help find better treatments
90% want to be contacted about trials
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