Patients living with: Eosinophilic Granulomatosis with Polyangiitis, aka Churg-Strauss Syndrome

Data highlights from the Invitae Patient Insights Network

Who are we?

Who Are We?

Patients: 54 Ages: 18 to >60

Male
15% Male
Female
76% Female

Impact on our lives

iImpact On Our Lives

Frequent doctor visits

60% 2 - 6 times a year
20% 1 - 3 times per month

Major episodes of care

been admitted to hospital
44% been admitted to hospital
been to the ER
43% been to the ER
had surgery
12% had surgery

A combination of treatments

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Prescription medication 44% Medical therapy 39% Over-the-counter supplements, vitamins, herbs, remedies 11%

Getting diagnosed

Getting diagnosed

Initial symptoms

Initial Symptoms
  • Shortness of breath
  • Chronic cough
  • Fatigue

Average age at diagnosis

Average Age at Diagnosis
47 Year(s) old
15 >60
Youngest AGE RANGE Oldest

Extensive testing

  • Blood testsBlood tests
  • CT scanCT scan
  • Medical historyMedical history
  • Physical examinationPhysical examination
  • BiopsyBiopsy

Different types of tests

Different Types of Tests
16

Diagnosing specialty

  • Pulmonology
  • Rheumatology
  • Hematology

Patients everywhere are eager to help find better treatments

Better Treatments

85% want to be contacted about trials

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