Patients living with: Eosinophilic Granulomatosis with Polyangiitis, aka Churg-Strauss Syndrome

Data highlights from the Invitae Patient Insights Network

Who are we?

Who Are We?

Patients: 12 Ages: 32 to >60

Male
0% Male
Female
100% Female

Impact on our lives

iImpact On Our Lives

Frequent doctor visits

Major episodes of care

been admitted to hospital
46% been admitted to hospital
been to the ER
38% been to the ER
had surgery
17% had surgery

A combination of treatments

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Getting diagnosed

Getting diagnosed

Initial symptoms

Initial Symptoms
  • Abnormal laboratory findings
  • Change in activity levels
  • Change in bowel and/or bladder habits

Average age at diagnosis

Average Age at Diagnosis
47 Year(s) old
33 >60
Youngest AGE RANGE Oldest

Extensive testing

  • BiopsyBiopsy
  • Blood testsBlood tests
  • Medical historyMedical history
  • Physical examinationPhysical examination
  • CT scanCT scan

Different types of tests

Different Types of Tests
14

Diagnosing specialty

  • Pulmonology
  • Rheumatology
  • Allergy/Immunology

Patients everywhere are eager to help find better treatments

Better Treatments

92% want to be contacted about trials

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