Patients living with: Eosinophilic Gastroenteritis

Data highlights from the Invitae Patient Insights Network

Who are we?

Who Are We?

Patients: 104 Ages: 2 to >60

28% Male
70% Female

Impact on our lives

iImpact On Our Lives

Frequent doctor visits

36% 2 - 6 times a year
29% 1 - 3 times per month

Major episodes of care

been to the ER
50% been to the ER
been admitted to hospital
38% been admitted to hospital
had surgery
12% had surgery

A combination of treatments

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Prescription medication 36% Special diet/nutrition 32% Over-the-counter supplements, vitamins, herbs, remedies 18%

Getting diagnosed

Getting diagnosed

Initial symptoms

Initial Symptoms
  • Gastrointestinal problems
  • Change in bowel and/or bladder habits
  • Pain

Average age at diagnosis

Average Age at Diagnosis
26 Year(s) old
<1 >60
Youngest AGE RANGE Oldest

Extensive testing

  • BiopsyBiopsy
  • Blood testsBlood tests
  • Physical examinationPhysical examination
  • OtherOther
  • CT scanCT scan

Different types of tests

Different Types of Tests

Diagnosing specialty

  • Gastroenterology
  • Allergy/Immunology
  • Adolescent Medicine

Patients everywhere are eager to help find better treatments

Better Treatments

95% want to be contacted about trials

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