Patients living with: Eosinophilic Esophagitis

Data highlights from the Invitae Patient Insights Network

Who are we?

Who Are We?

Patients: 3,319 Ages: <1 to >60

Male
50% Male
Female
49% Female

Impact on our lives

iImpact On Our Lives

Frequent doctor visits

52% 2 - 6 times a year
14% One time a year

Major episodes of care

been to the ER
49% been to the ER
been admitted to hospital
32% been admitted to hospital
had surgery
19% had surgery

A combination of treatments

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Prescription medication 38% Special diet/nutrition 34% Over-the-counter supplements, vitamins, herbs, remedies 16%

Getting diagnosed

Getting diagnosed

Initial symptoms

Initial Symptoms
  • Gastrointestinal problems
  • Other
  • Changes in appetite

Average age at diagnosis

Average Age at Diagnosis
22 Year(s) old
<1 >60
Youngest AGE RANGE Oldest

Extensive testing

  • BiopsyBiopsy
  • OtherOther
  • Physical examinationPhysical examination
  • Blood testsBlood tests
  • Medical historyMedical history

Different types of tests

Different Types of Tests
22

Diagnosing specialty

  • Gastroenterology
  • Allergy/Immunology
  • Ears, Nose, Throat Surgeon

Patients everywhere are eager to help find better treatments

Better Treatments

90% want to be contacted about trials

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