Patients living with: Eosinophilic Esophagitis

Data highlights from the Invitae Patient Insights Network

Who are we?

Who Are We?

Patients: 1,242 Ages: <1 to >60

52% Male
47% Female

Impact on our lives

iImpact On Our Lives

Frequent doctor visits

46% 2 - 6 times a year
15% One time a year

Major episodes of care

been to the ER
48% been to the ER
been admitted to hospital
32% been admitted to hospital
had surgery
20% had surgery

A combination of treatments

image description
Prescription medication 37% Special diet/nutrition 31% Over-the-counter supplements, vitamins, herbs, remedies 18%

Getting diagnosed

Getting diagnosed

Initial symptoms

Initial Symptoms
  • Gastrointestinal problems
  • Other
  • Changes in appetite

Average age at diagnosis

Average Age at Diagnosis
20 Year(s) old
1 >60
Youngest AGE RANGE Oldest

Extensive testing

  • BiopsyBiopsy
  • OtherOther
  • Physical examinationPhysical examination
  • Blood testsBlood tests
  • Medical historyMedical history

Different types of tests

Different Types of Tests

Diagnosing specialty

  • Gastroenterology
  • Allergy/Immunology
  • Ears, Nose, Throat Surgeon

Patients everywhere are eager to help find better treatments

Better Treatments

90% want to be contacted about trials

Brought to you by:

Want to learn more?