Patients living with: Eosinophilic Colitis

Data highlights from the Invitae Patient Insights Network

Who are we?

Who Are We?

Patients: 137 Ages: 1 to >60

Male
26% Male
Female
73% Female

Impact on our lives

iImpact On Our Lives

Frequent doctor visits

43% 1 - 3 times per month
29% 2 - 6 times a year

Major episodes of care

been to the ER
47% been to the ER
been admitted to hospital
40% been admitted to hospital
had surgery
13% had surgery

A combination of treatments

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Prescription medication 57% Special diet/nutrition 26% Medical foods 9%

Getting diagnosed

Getting diagnosed

Initial symptoms

Initial Symptoms
  • Gastrointestinal problems
  • Change in bowel and/or bladder habits
  • Pain

Average age at diagnosis

Average Age at Diagnosis
25 Year(s) old
<1 >60
Youngest AGE RANGE Oldest

Extensive testing

  • BiopsyBiopsy
  • Blood testsBlood tests
  • OtherOther
  • CT scanCT scan
  • Physical examinationPhysical examination

Different types of tests

Different Types of Tests
15

Diagnosing specialty

  • Gastroenterology
  • General Practitioner/General Internal Medicine
  • Allergy/Immunology

Patients everywhere are eager to help find better treatments

Better Treatments

96% want to be contacted about trials

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