Patients living with: Eosinophilic Fasciitis

Data highlights from the Invitae Patient Insights Network

Who are we?

Who Are We?

Patients: 34 Ages: 16 to >60

26% Male
74% Female

Impact on our lives

iImpact On Our Lives

Frequent doctor visits

50% 1 - 3 times per month
25% 2 - 6 times a year

Major episodes of care

been to the ER
53% been to the ER
been admitted to hospital
40% been admitted to hospital
had surgery
7% had surgery

A combination of treatments

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Prescription medication 50% Over-the-counter supplements, vitamins, herbs, remedies 38% Special diet/nutrition 13%

Getting diagnosed

Getting diagnosed

Initial symptoms

Initial Symptoms
  • Other
  • Pain
  • Skin problems

Average age at diagnosis

Average Age at Diagnosis
41 Year(s) old
10 >60
Youngest AGE RANGE Oldest

Extensive testing

  • BiopsyBiopsy
  • Blood testsBlood tests
  • Physical examinationPhysical examination
  • CT scanCT scan

Different types of tests

Different Types of Tests

Diagnosing specialty

  • Rheumatology
  • Dermatology
  • Hematology

Patients everywhere are eager to help find better treatments

Better Treatments

94% want to be contacted about trials

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