Patients living with: All diagnoses

Data highlights from the Invitae Patient Insights Network

Who are we?

Who Are We?

Patients: 14,318 Ages: <1 to >60

Male
30% Male
Female
69% Female

Impact on our lives

iImpact On Our Lives

Frequent doctor visits

42% 2 - 6 times a year
14% 1 - 3 times per month

Major episodes of care

been to the ER
39% been to the ER
been admitted to hospital
38% been admitted to hospital
had surgery
23% had surgery

A combination of treatments

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Prescription medication 35% Over-the-counter supplements, vitamins, herbs, remedies 20% Special diet/nutrition 16%

Getting diagnosed

Getting diagnosed

Initial symptoms

Initial Symptoms
  • Other
  • Gastrointestinal problems
  • Developmental delays

Average age at diagnosis

Average Age at Diagnosis
30 Year(s) old
<1 >60
Youngest AGE RANGE Oldest

Extensive testing

  • Blood testsBlood tests
  • Physical examinationPhysical examination
  • Genetic TestingGenetic Testing
  • MRIMRI
  • BiopsyBiopsy

Different types of tests

Different Types of Tests
22

Diagnosing specialty

  • Gastroenterology
  • Neurology
  • Genetics

Patients everywhere are eager to help find better treatments

Better Treatments

87% want to be contacted about trials

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