Patients living with:
Persistent Postural Perceptual Dizziness (PPPD)
Data highlights from the Invitae Patient Insights Network
Who are we?
Patients: 102 Ages: <1 to >60
Impact on our lives
Frequent doctor visits
55%
2 - 6 times a year
10%
1 - 3 times per month
Major episodes of care
24%
been admitted to hospital
A combination of treatments
Prescription medication 43%
Over-the-counter supplements, vitamins, herbs, remedies 24%
None 19%
Getting diagnosed
Initial symptoms
- Dizziness
- Fatigue
- Changes in senses
Average age at diagnosis
19
>60
Youngest
AGE RANGE
Oldest
Diagnosing specialty
- Neurology
- Ears, Nose, Throat Surgeon
- Other type of doctor or healthcare provider
Patients everywhere are eager to help find better treatments
80% want to be contacted about trials
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