Patients living with:
Primary Lateral Sclerosis
Data highlights from the Invitae Patient Insights Network
Who are we?
Patients: 44 Ages: 33 to >60
Impact on our lives
Frequent doctor visits
65%
2 - 6 times a year
17%
One time a year
Major episodes of care
25%
been admitted to hospital
A combination of treatments
Prescription medication 43%
Over-the-counter supplements, vitamins, herbs, remedies 22%
None 14%
Getting diagnosed
Initial symptoms
Average age at diagnosis
28
>60
Youngest
AGE RANGE
Oldest
Patients everywhere are eager to help find better treatments
98% want to be contacted about trials
Brought to you by:
MRI
Physical examination
Blood tests
Medical history
EEG (electroencephalogram, examines brain waves)
