Patients living with:
Vestibular Schwannoma
Data highlights from the Invitae Patient Insights Network
Who are we?
Patients: 328 Ages: 20 to >60
Impact on our lives
Frequent doctor visits
53%
2 - 6 times a year
16%
One time a year
Major episodes of care
35%
been admitted to hospital
A combination of treatments
None 52%
Prescription medication 14%
Over-the-counter supplements, vitamins, herbs, remedies 9%
Getting diagnosed
Initial symptoms
- Changes in senses
- Dizziness
- Other
Average age at diagnosis
2
>60
Youngest
AGE RANGE
Oldest
Diagnosing specialty
- Ears, Nose, Throat Surgeon
- Neurology
- Radiology
Patients everywhere are eager to help find better treatments
81% want to be contacted about trials
Brought to you by:
MRI
Other
Physical examination
CT scan
Medical history
