Patients living with:
Morgellons Disease (Unexplained Dermopathy)
Data highlights from the Invitae Patient Insights Network
Who are we?
Patients: 2,461 Ages: 3 to >60
Impact on our lives
Frequent doctor visits
37%
Do not see a doctor or healthcare provider for this condition
21%
2 - 6 times a year
Major episodes of care
24%
been admitted to hospital
A combination of treatments
Over-the-counter supplements, vitamins, herbs, remedies 38%
Prescription medication 24%
Special diet/nutrition 16%
Getting diagnosed
Initial symptoms
- Skin problems
- Fatigue
- Malaise
Average age at diagnosis
1
>60
Youngest
AGE RANGE
Oldest
Diagnosing specialty
- Did not see a doctor or healthcare provider for this condition
- Unsure
- Other type of doctor or healthcare provider
Patients everywhere are eager to help find better treatments
94% want to be contacted about trials
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