Patients living with:
Other
Data highlights from the Invitae Patient Insights Network
Who are we?
Patients: 166 Ages: 17 to >60
Impact on our lives
Frequent doctor visits
44%
2 - 6 times a year
13%
Less than once a year
Major episodes of care
34%
been admitted to hospital
A combination of treatments
Prescription medication 30%
Over-the-counter supplements, vitamins, herbs, remedies 22%
Other 17%
Getting diagnosed
Initial symptoms
- Dizziness
- Changes in senses
- Fatigue
Average age at diagnosis
4
>60
Youngest
AGE RANGE
Oldest
Diagnosing specialty
- Ears, Nose, Throat Surgeon
- Neurology
- Other type of doctor or healthcare provider
Patients everywhere are eager to help find better treatments
82% want to be contacted about trials
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