Patients living with:
Not Yet Diagnosed (NYD)
Data highlights from the Invitae Patient Insights Network
Who are we?
Patients: 217 Ages: 9 to >60
Impact on our lives
Frequent doctor visits
45%
2 - 6 times a year
13%
Do not see a doctor or healthcare provider for this condition
Major episodes of care
28%
been admitted to hospital
A combination of treatments
Prescription medication 30%
None 25%
Over-the-counter supplements, vitamins, herbs, remedies 22%
Getting diagnosed
Initial symptoms
- Dizziness
- Fatigue
- Changes in senses
Average age at diagnosis
1
>60
Youngest
AGE RANGE
Oldest
Diagnosing specialty
- Ears, Nose, Throat Surgeon
- Neurology
- Did not see a doctor or healthcare provider for this condition
Patients everywhere are eager to help find better treatments
83% want to be contacted about trials
Brought to you by:
MRI
Physical examination
Other
Blood tests
CT scan
