Patients living with:
Bilateral Vestibular Hypofunction
Data highlights from the Invitae Patient Insights Network
Who are we?
Patients: 166 Ages: 29 to >60
Impact on our lives
Frequent doctor visits
30%
2 - 6 times a year
21%
One time a year
Major episodes of care
34%
been admitted to hospital
A combination of treatments
None 43%
Prescription medication 19%
Other 17%
Getting diagnosed
Initial symptoms
- Dizziness
- Changes in senses
- Fatigue
Average age at diagnosis
10
>60
Youngest
AGE RANGE
Oldest
Diagnosing specialty
- Ears, Nose, Throat Surgeon
- Other type of doctor or healthcare provider
- Neurology
Patients everywhere are eager to help find better treatments
89% want to be contacted about trials
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