Patients living with:
Dandy-Walker Syndrome
Data highlights from the Invitae Patient Insights Network
Who are we?
Patients: 459 Ages: 3 to >60
Impact on our lives
Frequent doctor visits
35%
2 - 6 times a year
13%
One time a year
Major episodes of care
38%
been admitted to hospital
A combination of treatments
Prescription medication 30%
None 24%
Over-the-counter supplements, vitamins, herbs, remedies 18%
Getting diagnosed
Initial symptoms
- Other
- Developmental delays
- No symptoms
Average age at diagnosis
<1
>60
Youngest
AGE RANGE
Oldest
Diagnosing specialty
- Neurology
- Obstetrics/Gynecology
- Radiology
Patients everywhere are eager to help find better treatments
88% want to be contacted about trials
Brought to you by:
MRI
CT scan
Ultrasound
Physical examination
EEG (electroencephalogram, examines brain waves)
