Patients living with:
Perilymph Fistula
Data highlights from the Invitae Patient Insights Network
Who are we?
Patients: 15 Ages: 34 to >60
Impact on our lives
Frequent doctor visits
50%
2 - 6 times a year
25%
1 or more times per week
Major episodes of care
32%
been admitted to hospital
A combination of treatments
Prescription medication 50%
Special diet/nutrition 25%
Medical therapy 13%
Getting diagnosed
Initial symptoms
- Dizziness
- Fatigue
- Change in activity levels
Average age at diagnosis
32
59
Youngest
AGE RANGE
Oldest
Diagnosing specialty
- Ears, Nose, Throat Surgeon
- Neurology
- Other type of doctor or healthcare provider
Patients everywhere are eager to help find better treatments
100% want to be contacted about trials
Brought to you by:
Medical history
MRI
Other
Physical examination
Blood tests
