Patients living with:
Mal de Debarquement
Data highlights from the Invitae Patient Insights Network
Who are we?
Patients: 791 Ages: <1 to >60
Impact on our lives
Frequent doctor visits
31%
2 - 6 times a year
20%
Less than once a year
Major episodes of care
22%
been admitted to hospital
A combination of treatments
Prescription medication 42%
Over-the-counter supplements, vitamins, herbs, remedies 22%
None 20%
Getting diagnosed
Initial symptoms
- Dizziness
- Fatigue
- Changes in senses
Average age at diagnosis
<1
>60
Youngest
AGE RANGE
Oldest
Diagnosing specialty
- Ears, Nose, Throat Surgeon
- Neurology
- Physical Medicine and Rehabilitation
Patients everywhere are eager to help find better treatments
94% want to be contacted about trials
Physical examination
Other
MRI
Medical history
Blood tests
