Patients living with:
Autoimmune Inner Ear Disease (AIED)
Data highlights from the Invitae Patient Insights Network
Who are we?
Patients: 21 Ages: 39 to >60
Impact on our lives
Frequent doctor visits
67%
2 - 6 times a year
17%
1 - 3 times per month
Major episodes of care
25%
been admitted to hospital
A combination of treatments
Prescription medication 42%
Over-the-counter supplements, vitamins, herbs, remedies 33%
Special diet/nutrition 17%
Getting diagnosed
Initial symptoms
- Dizziness
- Change in activity levels
- Chronic cough
Average age at diagnosis
16
>60
Youngest
AGE RANGE
Oldest
Diagnosing specialty
- Ears, Nose, Throat Surgeon
- Neurology
- Physical Medicine and Rehabilitation
Patients everywhere are eager to help find better treatments
86% want to be contacted about trials
Brought to you by:
Medical history
MRI
Physical examination
Blood tests
CT scan
