Patients living with: Eosinophilic Duodenitis

Data highlights from the Invitae Patient Insights Network

Who are we?

Who Are We?

Patients: 10 Ages: 8 to >60

Male
40% Male
Female
60% Female

Impact on our lives

iImpact On Our Lives

Frequent doctor visits

60% Unsure
20% 1 - 3 times per month

Major episodes of care

been admitted to hospital
44% been admitted to hospital
been to the ER
33% been to the ER
had surgery
22% had surgery

A combination of treatments

image description
Prescription medication 30% Special diet/nutrition 30% Medical foods 10%

Getting diagnosed

Getting diagnosed

Initial symptoms

Initial Symptoms
  • Gastrointestinal problems
  • Change in bowel and/or bladder habits
  • Growth delay

Average age at diagnosis

Average Age at Diagnosis
19 Year(s) old
1 59
Youngest AGE RANGE Oldest

Extensive testing

  • BiopsyBiopsy
  • Blood testsBlood tests
  • CT scanCT scan
  • EEG (electroencephalogram, examines brain waves)EEG (electroencephalogram, examines brain waves)
  • Family historyFamily history

Different types of tests

Different Types of Tests
7

Diagnosing specialty

  • Gastroenterology
  • Endocrinology
  • Other type of doctor or healthcare provider

Patients everywhere are eager to help find better treatments

Better Treatments

90% want to be contacted about trials

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