Patients living with:
Linear Scleroderma
Data highlights from the Invitae Patient Insights Network
Who are we?
Patients: 59 Ages: 12 to >60
Impact on our lives
Frequent doctor visits
40%
2 - 6 times a year
40%
One time a year
Major episodes of care
35%
been admitted to hospital
A combination of treatments
Prescription medication 50%
Other 33%
Over-the-counter supplements, vitamins, herbs, remedies 17%
Getting diagnosed
Initial symptoms
Average age at diagnosis
4
58
Youngest
AGE RANGE
Oldest
Diagnosing specialty
- Dermatology
- Neurology
- Rheumatology
Patients everywhere are eager to help find better treatments
88% want to be contacted about trials
Brought to you by:
Biopsy
Blood tests
Unsure
CT scan
MRI
