Patients living with: Eosinophilic Cellulitis

Data highlights from the Invitae Patient Insights Network

Who are we?

Who Are We?

Patients: 10 Ages: 11 to >60

Male
20% Male
Female
80% Female

Impact on our lives

iImpact On Our Lives

Frequent doctor visits

33% 1 - 3 times per month
33% 7 - 11 times a year

Major episodes of care

been to the ER
57% been to the ER
been admitted to hospital
43% been admitted to hospital

A combination of treatments

image description
Prescription medication 50% Special diet/nutrition 25% Unsure 25%

Getting diagnosed

Getting diagnosed

Initial symptoms

Initial Symptoms
  • Skin problems
  • Pain
  • Fatigue

Average age at diagnosis

Average Age at Diagnosis
35 Year(s) old
2 >60
Youngest AGE RANGE Oldest

Extensive testing

  • BiopsyBiopsy
  • Blood testsBlood tests
  • Medical historyMedical history
  • OtherOther
  • Physical examinationPhysical examination

Different types of tests

Different Types of Tests
6

Diagnosing specialty

  • Dermatology
  • Did not see a doctor or healthcare provider for this condition
  • Family Medicine

Patients everywhere are eager to help find better treatments

Better Treatments

80% want to be contacted about trials

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