Patients living with: Eosinophilic Fasciitis

Data highlights from the Invitae Patient Insights Network

Who are we?

Who Are We?

Patients: 97 Ages: 14 to >60

Male
24% Male
Female
76% Female

Impact on our lives

iImpact On Our Lives

Frequent doctor visits

45% 2 - 6 times a year
30% 1 - 3 times per month

Major episodes of care

been to the ER
52% been to the ER
been admitted to hospital
39% been admitted to hospital
had surgery
9% had surgery

A combination of treatments

image description
Prescription medication 55% Over-the-counter supplements, vitamins, herbs, remedies 27% Special diet/nutrition 12%

Getting diagnosed

Getting diagnosed

Initial symptoms

Initial Symptoms
  • Skin problems
  • Other
  • Pain

Average age at diagnosis

Average Age at Diagnosis
44 Year(s) old
10 >60
Youngest AGE RANGE Oldest

Extensive testing

  • BiopsyBiopsy
  • Blood testsBlood tests
  • Physical examinationPhysical examination
  • MRIMRI
  • CT scanCT scan

Different types of tests

Different Types of Tests
15

Diagnosing specialty

  • Rheumatology
  • Dermatology
  • Neurology

Patients everywhere are eager to help find better treatments

Better Treatments

94% want to be contacted about trials

Brought to you by:

Want to learn more?

Explore Directory Contact Us