Patients living with:
Idiopathic Intracranial Hypertension
Data highlights from the Invitae Patient Insights Network
Who are we?
Patients: 94 Ages: 11 to >60
Impact on our lives
Frequent doctor visits
36%
2 - 6 times a year
21%
1 - 3 times per month
Major episodes of care
35%
been admitted to hospital
A combination of treatments
Prescription medication 53%
Other 16%
Special diet/nutrition 16%
Getting diagnosed
Initial symptoms
Average age at diagnosis
9
50
Youngest
AGE RANGE
Oldest
Diagnosing specialty
- Neurology
- Ophthalmology
- Unsure
Patients everywhere are eager to help find better treatments
89% want to be contacted about trials
Brought to you by:
MRI
Other
CT scan
Physical examination
Blood tests
