This registry was created to develop a comprehensive data bank of individuals with Pompe Disease. By joining our registry and providing information about your experiences and symptoms of Pompe Disease, you will be helping with the important collection of much needed data on this often misunderstood disorder. to better understand its characteristics, determine areas needing further research, and develop targeted treatments to improve the lives of those affected. Research needs data, and that information comes from those willing to share their time and experiences. This registry will also benefit the Pompe community as we connect with each other and to potential researchers and/or companies interested in developing new treatment options.