The National Tay-Sachs & Allied Diseases Association (NTSAD), along with the Cure Tay-Sachs Foundation (CTSF), has launched the first GM2 Tay-Sachs and Sandhoff Disease PIN as a tool to collect data and patient experiences that could ultimately help promising research advance to clinical trials. This data will be an immensely important tool for understanding our community and will greatly impact the path of clinical trial readiness.